I haven't been posting a lot as I have been really struggling with trying to manage my life with pain.
I have bad news to tell, I have been diagnosed with Postural Orthostatic Tachycardia Syndrome - Dysautonomia. I have also come off all of my medication, including Lyrica and Panadol osteo. Which basically means, every time i sit or stand up I get light headed and my heart races because the blood is settling in my lower body instead of my head. It makes me feel like I'm having a heart attack and I see stars and fall into the wall. I was also starting to get terrible side effects from taking so much of the prescribed medication that it started to upset my stomach and so on, where I could no longer handle it. I'm doing alright off of my medication. I did not wean myself or anything, I just stopped. I kind of went cold turkey from the Lyrica, shaking and what not.. but I got over it. I was struck with Gastro virus for a while which ultimately made my situation worse. I have not attended school in many weeks. I've had a meeting with the principal and the guidance cousillor and they suggested I do home schooling (BSDE). I feel like they no longer want to deal with me at school and tried fobbing me off with the opportunity at reach. Although, I do agree that in my sistuation, distance education is probably the more suitable choice for me. Yes I have lost friends from not being at school and that is difficult, but if I get added to a virtual class, I may make some friends through the social media side of the schooling. I can also no longer eat products with dairy or egg as I become very sick. I'm afraid to eat. The only thing I can eat is bread with nuttelex (nut free, dairy free, egg free etc) butter, which I haven't tried yet. I am able to eat Thai noodles from the local noodle shop which is funny enough. I'm not eating often, only at dinner time and I'm not hungry or anything. Do I have an eating disorder? I want to eat, but I just can't. It makes me feel too unwell at the moment. I lay in my hospital bed at home and just watch movies because I'm in too much pain to do anything else.
